The most common symptoms overall are burning and electrical sensations, described to be like “shooting pain.” The patient may also experience muscle spasms, local swelling, abnormally increased sweating, changes in skin temperature and color, softening and thinning of bones, joint tenderness or stiffness, restricted or painful movement.

My name is Terri Levine. I suffer from RSD from an injury I received a few years ago and hate to think of the pain that a child suffers from each day with this disease.

Imagine pain so severe the breeze of someone walking by causing excruciating pain so intense it’s as if someone just lit you on fire, the vibration of a vacuum cleaner shooting through you like knives, or muscle spasms so strong your body shakes uncontrollably. Imagine not being able to roll yourself over or sit up without help, not being able to swallow, waking up blind, or trying not to breathe because it causes too much pain. Being stuck in bed, feeling so isolated and alone, while life passes by and everyone you once knew moving with it, leaving you behind. This is the life Tabitha has been living for the past 11 years. Click here to read more about this beautiful young girl who suffers from RSD.

Danielle is 17 and before she bumped the outside of her knee, she was an amazing young entrepreneur with a gift for helping children with ADHD and Autism using her horses. She is a beautiful human being with so much love and compassion for others. She has been affected by RSD for 1 1/2 years. She has been on a crazy nightmare in Rhode Island. Danielle was hospitalized, paced in leather restraints, her room stripped of all belongings and a guard placed at her door because she was in severe pain. This is a video of the pain the hospital made her stay in for 10 days:

Here is the link to Danielle’s website where her mother posted the blog about it,

Alissa is another young victim of RSD. Videos of her story through the pain are here:

I’m asking for your assistance to raise funds to help Tabitha, Danielle, and other children with RSD, get the medical care they need. Please click the button below to make your donation now and please share this site with others.

All funds raised by The Terri Levine Foundation for Children with RSD will go directly to helping these children.